Hi Everyone,
I was browsing on the CDKL5 forum group & someone suggested an awesome song that she thought we should dedicate to our beautiful CDKL5 kiddies but would fit for any child with a disability and that very cool song is
Katy Perry;s "Firework". Ive always lived this song but never listened ot the lyrics, when I did I couldnt help but cry. Il post the link here of the slower version, i love it. Enjoy!
http://www.youtube.com/
Friday, April 29, 2011
Happy very late New Year!!
Hi all,
Im sorry I havent posted on here for ages, time has got away on me with Jorja starting school in Feb & Honor having her gastrostomy fitted (finally). Things are going good at the moment. Honor had a NG tube in last December & 3weeks ago had her G-tube fitted along with Nissen Fundiplication (reflux fixed). We had a bit of strife with g-tube as the day after surgery it came out due to a faulty balloon, which would only happen to us.
All was going well then she contracted thrush around the g-tube site, after fungal cream & oral drops we are now on the right track.
Jorja is loving school & doing very well but is still very tired after school. Easter was great & we are just at the end of our 2week stint of the school holidays. I really enjoy the holidays.
Honor has finished preschool & starts Afternoon kindy this term for 2hours 3 afternoons a week. Thats all for now, hope everyone is well, keep warm winter is definatly here!
All my love Kelly
Im sorry I havent posted on here for ages, time has got away on me with Jorja starting school in Feb & Honor having her gastrostomy fitted (finally). Things are going good at the moment. Honor had a NG tube in last December & 3weeks ago had her G-tube fitted along with Nissen Fundiplication (reflux fixed). We had a bit of strife with g-tube as the day after surgery it came out due to a faulty balloon, which would only happen to us.
All was going well then she contracted thrush around the g-tube site, after fungal cream & oral drops we are now on the right track.
Jorja is loving school & doing very well but is still very tired after school. Easter was great & we are just at the end of our 2week stint of the school holidays. I really enjoy the holidays.
Honor has finished preschool & starts Afternoon kindy this term for 2hours 3 afternoons a week. Thats all for now, hope everyone is well, keep warm winter is definatly here!
All my love Kelly
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